Category: Chronic Lyme Disease
I am walking after three years spent in bed, how could anything be worse than Lyme Disease. I’ve lost three years of my life screaming in pain, narcotics, nine months of twice a day IV Infusion Treatments. The conflict in my marriage is understandable but not erased. I can not stress enough how important Tick Borne illnesses are, they can kill. If you already … Read More Powassan Virus worse than Lyme Disease?
The days get lonely, when your symptoms reach the disability stage. Times can get lonely, ask friend or create a circle of like-minded friends who you can talk honestly with. Keep Learning. If you’re concerned about addiction, talk to Doctor as you decide the treatment best for you.One complete withdraw on Xanax and two days without Temazepam. This is a monthly struggle. The CDC is … Read More Lyme Update 18 *Chronic Illness & Controlled Substances*
I included the photo to show I’m very organized and life is getting ready for change. *The chatter are my thoughts, a Lyme Literate Doctor can consult and talk about options.* Xx M Living with Chronic Lyme Disease, requires tremendous faith, inner and physical strength. Please search to discover you’re core strength: it strength may save your life. Have you planned for physical matters … Read More Bumpy Road With Chronic Lyme Diseases Keep Moving Forward 🙏
I’m sending you health and happiness. Get lost in music, get your feet moving and GET GROVE ON. Wild Horses remind me of unpleasant times in life, yet tied to my soul. I’m a Survivor, it’s nice to remember. Wild Horses reminds me how far I’ve come. XxM
Chronic Lyme has invaded my brain, emotions and bodies ability to move without tremendous pain. I’m blessed to have pain meds and others to provide comfort. Not being to walking is depressing. I wanted to thank you and Twitter buddies for your love, prayers and awesome videos sent my way. I love James Brown, his grove is infectious. “I Feel Good” video is my … Read More Thank You For Love And Prayers
@SeeYouClearly Forging through another day! Life is good! 👍 pic.twitter.com/Kab7zdpYLV — Nobody's Hero (@BoldAsLove65) October 12, 2016
The International Lyme Disease Association (ILADS) http://ilads.org, knows Chronic Lyme Disease exists, requiring extensive treatment currently restricted by the Center of Disease Control. The letter is a proactive communication advocating for longer treatment options. Taken From ILADS letter to Centers for Medicare & Medicaid Services Department of Health and Human Services. RE: Proposed Rule concerning antibiotic stewardship in Hospitals, Critical Access Hospitals and Nursing … Read More ILADS Response To Centers of Medicare/Medicaid Services of Health & Human Services
Let’s Talk Lyme Last update, we talked about IV Therapy as a treatment option for Chronic Lyme Disease. IV Therapy is one type of medicine to help you heal. I also take a close to 20 prescriptions and who knows how many supplements. Insurance doesn’t pay for the IV Therapy which is quite common. To ask a question thru the patient Portal it’s $45 … Read More Lyme Update #16 *Lyme Winning–Me, blew a gasket and leaking oil
I celebrate my 7th year blogging anniversary and turn 53 in four days. Neither occasion are important on their own. What make this year so special is I’m alive. So many of you prayed , sent well wishes yet never treated me different. I started my first blog to help grieve my granny’s death. Flash forward, I’m blessed learning other cultures around the world. Blogging … Read More I want all WP friends to join me for a large celebration, party hats, clowns, kazoos, dancing Queen
Growing up with four bothers, I was a fearless tomboy. At 12 years old I was crowned with braces. After a few pops in the mouth my football career was over. Good childhood memories. Chronic Lyme Diseases affects everyone different, my parasites settled into my brain. The first sign was the lack of balance. Think about the walk taken after getting pulling over for … Read More Lyme: Falling Hazards for the Fearless.
I dedicate this post to the chronically ill, newly diagnosed and their caregivers. You are the Survivors. It took three painful years to learn I had Chronic Lyme Disease. I’ve had bumps over the years, nothing like Lyme. I’m totally dependent on my husband. Every week he takes countless hours off work. There’s IV Therapy before and after work. Day to-day monitoring the catheter with weekly bandage changes. … Read More Learning from Chronic Illness *Tid Bits, Falling and Learning To Fly*
The post is my opinion based on my own experience and talking to people with Lyme Disease. The symptoms of Lyme Disease are the same as many chronic illnesses. The parasites move quickly, if not caught early, the more difficult to treat. Lyme is a serious illness, it moves to major organs which bring on worst symptoms. I have Chronic Lyme and two co-infections. The … Read More Avril Lavigne on Her Struggle with Lyme Disease
Dr Jemsek is an Infectious Disease Doctor who played a pivotal role identifying AIDS in N. Carolina.You will hear him mention in the video. He is my hero and my Doctor. There are several treatment methods, each Doctor is different. I’m on antibiotic IV Therapy 5 days a week, Lactose Ringer when not on IV Therapy, close to 30 supplements, Morphine Patch, two horrible liquid … Read More Dr. Jemsek “Speaks the Truth”About Lyme Disease
Money can create stress in the strongest marriages. With Chronic Lyme the topic of money was an issue in our house. How does $39,000 for 7-9 months of treatment impact retirement plans? I considered not spending the money. That was a heated issue, I saw our retirement go down the drain, it wasn’t a good feeling. The timeframe to wellness is 2-3 years. Based … Read More Lyme Update #15 *In Sickness and In Health*
My father committed suicide in 1992 at 52 years old. After his death I questioned if I would reach 52. It’s not that I loved and missed my father, he sexually abused me. The thoughts were tied to deep depression and helping my grandmother grieve. In time the thoughts faded away until Christmas night. I don’t drink but do suffer from Chronic Lyme … Read More My Reaction to Faded Memories *Death Haunts Me*