Category: Lyme Literate Doctor

Lyme Tidbit: Port Gone…after two years *Happy Dance*

Port Removed long after recommended time. At last Psychiatrist appointment he questioned why the port had not been removed. He is also a Medical Doctor and proceeded to tell me all the flesh-eating, horrible infections a port can cause. I said not going to D.C. in several month for surgery. We received a referral from General Doctor, had surgery the same week. Oh what … Read More Lyme Tidbit: Port Gone…after two years *Happy Dance*

Powassan Virus worse than Lyme Disease?

I am walking after three years spent in bed, how could anything be worse than Lyme Disease. I’ve lost three years of my life screaming in pain, narcotics, nine months of twice a day IV Infusion Treatments. The conflict in my marriage is understandable but not erased. I can not stress enough how important Tick Borne illnesses are, they can kill. If you already … Read More Powassan Virus worse than Lyme Disease?

Lyme Update 18 *Chronic Illness & Controlled Substances*

The days get lonely, when your symptoms reach the disability stage. Times can get lonely, ask friend or create a circle of like-minded friends who you can talk honestly with.  Keep Learning. If you’re concerned about addiction, talk to Doctor as you decide the treatment best for you.One complete withdraw on Xanax and two days without Temazepam. This is a monthly struggle. The CDC is … Read More Lyme Update 18 *Chronic Illness & Controlled Substances*

 Bumpy Road With Chronic Lyme Diseases  Keep Moving Forward 🙏

I included the photo to show I’m very organized and life is getting ready for change. *The chatter are my thoughts, a Lyme Literate Doctor can consult and talk about options.*  Xx  M Living with Chronic Lyme Disease, requires tremendous faith, inner and physical strength. Please search to discover you’re core strength: it  strength may save your life. Have you  planned for physical matters … Read More  Bumpy Road With Chronic Lyme Diseases  Keep Moving Forward 🙏

Thank You For Love And Prayers

Chronic Lyme has invaded my brain, emotions and bodies ability to move without tremendous pain. I’m blessed to have pain meds and others to provide comfort. Not being to walking is depressing. I wanted to thank you and Twitter buddies for your love, prayers and awesome videos sent my way. I love James Brown, his grove is infectious. “I Feel Good” video is my … Read More Thank You For Love And Prayers

Why do soldiers fight and die for America.

@SeeYouClearly Forging through another day! Life is good! 👍 pic.twitter.com/Kab7zdpYLV — Nobody's Hero (@BoldAsLove65) October 12, 2016

ILADS Response To Centers of Medicare/Medicaid Services of Health & Human Services

The International Lyme Disease Association (ILADS) http://ilads.org, knows Chronic Lyme Disease exists, requiring extensive treatment currently restricted by the Center of Disease Control. The letter is a proactive communication advocating for longer treatment options. Taken From ILADS letter to Centers for Medicare & Medicaid Services Department of Health and Human Services. RE: Proposed Rule concerning antibiotic stewardship in Hospitals, Critical Access Hospitals and Nursing … Read More ILADS Response To Centers of Medicare/Medicaid Services of Health & Human Services

Want to Join Me for Dinner? I made your favorite!

Lyme Update #16 *Lyme Winning–Me, blew a gasket and leaking oil

Let’s Talk Lyme Last update, we talked about IV Therapy as a treatment option for Chronic Lyme Disease. IV Therapy is one type of medicine to help you heal. I also take a close to 20 prescriptions and who knows how many supplements. Insurance doesn’t pay for the IV Therapy which is quite common. To ask a question thru the patient Portal it’s $45 … Read More Lyme Update #16 *Lyme Winning–Me, blew a gasket and leaking oil

Learning from Chronic Illness *Tid Bits, Falling and Learning To Fly*

I dedicate this post to the chronically ill, newly diagnosed and their caregivers. You are the Survivors. It took three painful years to learn I had Chronic Lyme Disease. I’ve had bumps over the years, nothing like Lyme. I’m totally dependent on my husband. Every week he takes countless hours off work. There’s IV Therapy before and after work. Day to-day monitoring the catheter with weekly bandage changes. … Read More Learning from Chronic Illness *Tid Bits, Falling and Learning To Fly*

Avril Lavigne on Her Struggle with Lyme Disease

The post is my opinion based on my own experience and talking to people with Lyme Disease.  The symptoms of Lyme Disease are the same as many chronic illnesses. The parasites move quickly, if not caught early, the more difficult to treat. Lyme is a serious illness, it moves to major organs which bring on worst symptoms. I have Chronic Lyme and two co-infections. The … Read More Avril Lavigne on Her Struggle with Lyme Disease

Dr. Jemsek “Speaks the Truth”About Lyme Disease

Dr Jemsek is an Infectious Disease Doctor who played a pivotal role identifying AIDS in N. Carolina.You will hear him mention in the video. He is my hero and my Doctor. There are several treatment methods, each Doctor is different. I’m on antibiotic IV Therapy 5 days a week, Lactose Ringer when not on IV Therapy, close to 30 supplements, Morphine Patch, two horrible liquid … Read More Dr. Jemsek “Speaks the Truth”About Lyme Disease

Hello friends *I'm Back, Glad to see you*

How Does Being Blind Change Your Life ?

Several months ago my vision changed drastically. I could barely read, saw things not there, my floaters looked like worms. My Lyme doctor looked and saw the worms and one of my Iris’s changed colors. Go see eye doctor she advised. It was time for new glasses and annual test. I left the eye exam shocked! I had lost vision in each eyes which did … Read More How Does Being Blind Change Your Life ?

Lyme Update 13: *On Yellow Brick Road With The Wicked Witch*

We were in DC last week for appointment with Lyme doctor. The Pope being in town caused  roadblocks and much excitement. Perfect weather, I could tell from the hotel window. The appointment was originally scheduled as phone update. I’m so frustrated, the doctor needed to see and hear. I contemplated not having treatment. If I could die from treatment, they needed more skin in … Read More Lyme Update 13: *On Yellow Brick Road With The Wicked Witch*

Lifesaving Lyme Disease Article And Resources For Safe Activities Outdoors This Fall

  Most countries are seeing warmer Fall and Winters, which allow ticks to live. Keep in mind enjoying hiking this Fall. Lyme Specialist recommend a spray with 20% DEET. Please read the article written in New York Magazine by a doctor who contracted Lyme Disease. He shares the difficult journey for diagnosis. It is heart breaking. Due to delay in diagnosis he had several … Read More Lifesaving Lyme Disease Article And Resources For Safe Activities Outdoors This Fall

Lyme Journal Entry 12 *Summer Refresher, NO ONE Is Immune To Lyme*

I’ve been sick for years without a correct diagnoses. I took a wild guess and found a Lyme doctor. A reckless one. He gave me a lab report saying I had three times the level of lead than normal. We spent three days looking for LEAD. I called the office, while on hold I realized this wasn’t my labs. Chronic Lyme Disease is a long … Read More Lyme Journal Entry 12 *Summer Refresher, NO ONE Is Immune To Lyme*

I'm Blessed To Celebrate My Birthday With You *I get stronger every birthday*

I hope everyone has a great day. Everyone can celebrate the blessing of today. It’s fun posting photo prints, you can see my interest outside of WP. You can see another side of me. Let’s Celebrate the day together. XO  M