Category: Lyme

I need a Rebel Yell, She cries more, more, more.

To C who’s in Reserves Chromic Lyme caused many falls, some serious, some not. I took two good slams to my right knee in 18 months. It didn’t prepare me for needing a knee replacement. They pain level from Lyme was so high,  the knee became part of the over all pain. I received the long needle steroid shot yesterday along with the news. … Read More I need a Rebel Yell, She cries more, more, more.

Lyme Tidbit: Port Gone…after two years *Happy Dance*

Port Removed long after recommended time. At last Psychiatrist appointment he questioned why the port had not been removed. He is also a Medical Doctor and proceeded to tell me all the flesh-eating, horrible infections a port can cause. I said not going to D.C. in several month for surgery. We received a referral from General Doctor, had surgery the same week. Oh what … Read More Lyme Tidbit: Port Gone…after two years *Happy Dance*

Powassan Virus worse than Lyme Disease?

I am walking after three years spent in bed, how could anything be worse than Lyme Disease. I’ve lost three years of my life screaming in pain, narcotics, nine months of twice a day IV Infusion Treatments. The conflict in my marriage is understandable but not erased. I can not stress enough how important Tick Borne illnesses are, they can kill. If you already … Read More Powassan Virus worse than Lyme Disease?

Lyme Update 18 *Chronic Illness & Controlled Substances*

The days get lonely, when your symptoms reach the disability stage. Times can get lonely, ask friend or create a circle of like-minded friends who you can talk honestly with.  Keep Learning. If you’re concerned about addiction, talk to Doctor as you decide the treatment best for you.One complete withdraw on Xanax and two days without Temazepam. This is a monthly struggle. The CDC is … Read More Lyme Update 18 *Chronic Illness & Controlled Substances*

 Bumpy Road With Chronic Lyme Diseases  Keep Moving Forward 🙏

I included the photo to show I’m very organized and life is getting ready for change. *The chatter are my thoughts, a Lyme Literate Doctor can consult and talk about options.*  Xx  M Living with Chronic Lyme Disease, requires tremendous faith, inner and physical strength. Please search to discover you’re core strength: it  strength may save your life. Have you  planned for physical matters … Read More  Bumpy Road With Chronic Lyme Diseases  Keep Moving Forward 🙏

Bridalveil Falls Yosemite National Park

Bridalveil Falls Bridalveil Fall (620 feet) Flows: all year, with peak flow in May. This is often the first waterfall visitors see when entering Yosemite Valley. In spring, it thunders; during the rest of the year, look for its characteristic light, swaying flow. You can see Bridalveil Fall from near the tunnels on the Wawona Road (Highway 41) or Big Oak Flat Road (Highway … Read More Bridalveil Falls Yosemite National Park

ILADS Response To Centers of Medicare/Medicaid Services of Health & Human Services

The International Lyme Disease Association (ILADS) http://ilads.org, knows Chronic Lyme Disease exists, requiring extensive treatment currently restricted by the Center of Disease Control. The letter is a proactive communication advocating for longer treatment options. Taken From ILADS letter to Centers for Medicare & Medicaid Services Department of Health and Human Services. RE: Proposed Rule concerning antibiotic stewardship in Hospitals, Critical Access Hospitals and Nursing … Read More ILADS Response To Centers of Medicare/Medicaid Services of Health & Human Services

Withdraw The Beast Within: Day One

I HAVE BIPOLAR DISORDER MY MENTAL HEALTH IS TIED TOGETHER WITH MULTIPLE MEDICATIONS, THREE OF WHICH I’M ADDICTED TO.  MY STRUGGLE WITH BIPOLAR DISORDER IS BALANCED OUT ON A FOUNDATION BUILT ON XANAX. I AM ADDICTED TO THREE OF THE DRUGS WITH XANAX BEING THE NASTIEST TO WITHDRAW FROM. LYME DIEASE HAS TAKEN MY MEMORY AND I TOOK TO MANY XANAX BEFORE THE NEXT REFILL. IT’S … Read More Withdraw The Beast Within: Day One

Lyme Update #16 *Lyme Winning–Me, blew a gasket and leaking oil

Let’s Talk Lyme Last update, we talked about IV Therapy as a treatment option for Chronic Lyme Disease. IV Therapy is one type of medicine to help you heal. I also take a close to 20 prescriptions and who knows how many supplements. Insurance doesn’t pay for the IV Therapy which is quite common. To ask a question thru the patient Portal it’s $45 … Read More Lyme Update #16 *Lyme Winning–Me, blew a gasket and leaking oil

Throw Back Thursday *I’m late, you should see my laptop*

I started at 8:30pm deciding on video’s. After years of enjoyment, YouTube and VeVo are enforcing copyright laws. Somebody has an answer, please leave a comment or email msandorm@verizon.net. The Shania Twain video is an example, of the the copyright screen. I stopped at 1:00am, way past bedtime. I’m praying for progress today. Here’s a snack while I work on desert. Xx  M   … Read More Throw Back Thursday *I’m late, you should see my laptop*

Avril Lavigne on Her Struggle with Lyme Disease

The post is my opinion based on my own experience and talking to people with Lyme Disease.  The symptoms of Lyme Disease are the same as many chronic illnesses. The parasites move quickly, if not caught early, the more difficult to treat. Lyme is a serious illness, it moves to major organs which bring on worst symptoms. I have Chronic Lyme and two co-infections. The … Read More Avril Lavigne on Her Struggle with Lyme Disease

Correct address for Looking for the Light, lookingforthelightblog.wp.com

My previous content has not transferred yet. I’m moving forward with new post       lookingforthelightblog.wp.com. Thank you for following me, I appreciate your comments and friendship. We can all help others. I’m here for you, just leave a note. Have A Blessed Day. XO Melinda

Brief Lyme Update #14 *Lyme-tough Me-still have fight in me*

I had surgery for a Port, it is required for IV Treatment. I choose IV Therapy because it has a record of healing faster. I can tell already a Port for 9-12 months is no merry-go-round. The surgical area’s not bad. I fell breaking my arm or it was run over by a monster truck before the trip. The procedure is short, it takes … Read More Brief Lyme Update #14 *Lyme-tough Me-still have fight in me*

Hello friends *I'm Back, Glad to see you*

How Does Being Blind Change Your Life ?

Several months ago my vision changed drastically. I could barely read, saw things not there, my floaters looked like worms. My Lyme doctor looked and saw the worms and one of my Iris’s changed colors. Go see eye doctor she advised. It was time for new glasses and annual test. I left the eye exam shocked! I had lost vision in each eyes which did … Read More How Does Being Blind Change Your Life ?

Lyme Update 13: *On Yellow Brick Road With The Wicked Witch*

We were in DC last week for appointment with Lyme doctor. The Pope being in town caused  roadblocks and much excitement. Perfect weather, I could tell from the hotel window. The appointment was originally scheduled as phone update. I’m so frustrated, the doctor needed to see and hear. I contemplated not having treatment. If I could die from treatment, they needed more skin in … Read More Lyme Update 13: *On Yellow Brick Road With The Wicked Witch*

Lifesaving Lyme Disease Article And Resources For Safe Activities Outdoors This Fall

  Most countries are seeing warmer Fall and Winters, which allow ticks to live. Keep in mind enjoying hiking this Fall. Lyme Specialist recommend a spray with 20% DEET. Please read the article written in New York Magazine by a doctor who contracted Lyme Disease. He shares the difficult journey for diagnosis. It is heart breaking. Due to delay in diagnosis he had several … Read More Lifesaving Lyme Disease Article And Resources For Safe Activities Outdoors This Fall

Lyme Journal Entry 12 *Summer Refresher, NO ONE Is Immune To Lyme*

I’ve been sick for years without a correct diagnoses. I took a wild guess and found a Lyme doctor. A reckless one. He gave me a lab report saying I had three times the level of lead than normal. We spent three days looking for LEAD. I called the office, while on hold I realized this wasn’t my labs. Chronic Lyme Disease is a long … Read More Lyme Journal Entry 12 *Summer Refresher, NO ONE Is Immune To Lyme*

I'm Blessed To Celebrate My Birthday With You *I get stronger every birthday*

I hope everyone has a great day. Everyone can celebrate the blessing of today. It’s fun posting photo prints, you can see my interest outside of WP. You can see another side of me. Let’s Celebrate the day together. XO  M

Lyme Journal Entry Eleven *Lyme Winning Me..Mad As Hell*

Four months ago I wrote the last Lyme Journal Entry. I thought my strength would allow me to blog thru the illness. Then the 5-6 month point turned my life upside down and it’s been hell. I fired Lyme doctor and not taking meds at this time. I know many are wondering why the hair photo? I was losing hair by the handful and … Read More Lyme Journal Entry Eleven *Lyme Winning Me..Mad As Hell*

What is on your Bucket List?

I had a small Bucket List in my head for years, more detailed one on my computer, this week I jumped head first in the deep end. I even added a tab on blog for others to see. Please share, I love hearing your goals. We can support each other thru the storm. The Lyme Disease has taken a toll on the great attitude … Read More What is on your Bucket List?

Taking my mind where it wants to go…..

Taking my mind to where it wants to go.  XO Warrior

Lyme Journal Entry Ten ** Lyme-Winning Me-Tugging the Trophy Back **

I want to thank heatherfightslyme.wordpress.com for posting this video. She suffers from Chronic Lyme, check out the wealth of knowledge on her site. While fighting our own battle we can forget children and teens suffer from Lyme Disease. This beautifully sad video shows the struggle to find answers from a teenagers eyes. I feel her pain, want to hug her and make everything okay. … Read More Lyme Journal Entry Ten ** Lyme-Winning Me-Tugging the Trophy Back **

Lyme Disease Journal Entry Nine **Lyme-Winning Me-Hanging By A Thread**

This is a 6 minute video from the 2014 Gala which raises money for Lyme Disease research. Patients talk in the video about the symptoms and difficulty getting a proper diagnosis. I have tears in my eyes. Severe gastro illness after starting second Malaria RX added Fatigue, exhausted and frustrated Doubled neuropathy Rx in effort to reduce pain Full body edema, very painful My esophagus ulcer … Read More Lyme Disease Journal Entry Nine **Lyme-Winning Me-Hanging By A Thread**

Throw Back Thursday **The Same Yet So Different** Dedicated To My Twin

To my dearest twin, you are always there with your humor or words of encouragement. Thank you.  🙂

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