Category: Tick Borne Illnesses

Lyme Tidbit: Port Gone…after two years *Happy Dance*

Port Removed long after recommended time. At last Psychiatrist appointment he questioned why the port had not been removed. He is also a Medical Doctor and proceeded to tell me all the flesh-eating, horrible infections a port can cause. I said not going to D.C. in several month for surgery. We received a referral from General Doctor, had surgery the same week. Oh what … Read More Lyme Tidbit: Port Gone…after two years *Happy Dance*

Therapy for mind and body

Powassan Virus worse than Lyme Disease?

I am walking after three years spent in bed, how could anything be worse than Lyme Disease. I’ve lost three years of my life screaming in pain, narcotics, nine months of twice a day IV Infusion Treatments. The conflict in my marriage is understandable but not erased. I can not stress enough how important Tick Borne illnesses are, they can kill. If you already … Read More Powassan Virus worse than Lyme Disease?

Lyme Update 18 *Chronic Illness & Controlled Substances*

The days get lonely, when your symptoms reach the disability stage. Times can get lonely, ask friend or create a circle of like-minded friends who you can talk honestly with.  Keep Learning. If you’re concerned about addiction, talk to Doctor as you decide the treatment best for you.One complete withdraw on Xanax and two days without Temazepam. This is a monthly struggle. The CDC is … Read More Lyme Update 18 *Chronic Illness & Controlled Substances*

 Bumpy Road With Chronic Lyme Diseases  Keep Moving Forward 🙏

I included the photo to show I’m very organized and life is getting ready for change. *The chatter are my thoughts, a Lyme Literate Doctor can consult and talk about options.*  Xx  M Living with Chronic Lyme Disease, requires tremendous faith, inner and physical strength. Please search to discover you’re core strength: it  strength may save your life. Have you  planned for physical matters … Read More  Bumpy Road With Chronic Lyme Diseases  Keep Moving Forward 🙏

ILADS Response To Centers of Medicare/Medicaid Services of Health & Human Services

The International Lyme Disease Association (ILADS) http://ilads.org, knows Chronic Lyme Disease exists, requiring extensive treatment currently restricted by the Center of Disease Control. The letter is a proactive communication advocating for longer treatment options. Taken From ILADS letter to Centers for Medicare & Medicaid Services Department of Health and Human Services. RE: Proposed Rule concerning antibiotic stewardship in Hospitals, Critical Access Hospitals and Nursing … Read More ILADS Response To Centers of Medicare/Medicaid Services of Health & Human Services

Lyme Update #16 *Lyme Winning–Me, blew a gasket and leaking oil

Let’s Talk Lyme Last update, we talked about IV Therapy as a treatment option for Chronic Lyme Disease. IV Therapy is one type of medicine to help you heal. I also take a close to 20 prescriptions and who knows how many supplements. Insurance doesn’t pay for the IV Therapy which is quite common. To ask a question thru the patient Portal it’s $45 … Read More Lyme Update #16 *Lyme Winning–Me, blew a gasket and leaking oil

Avril Lavigne on Her Struggle with Lyme Disease

The post is my opinion based on my own experience and talking to people with Lyme Disease.  The symptoms of Lyme Disease are the same as many chronic illnesses. The parasites move quickly, if not caught early, the more difficult to treat. Lyme is a serious illness, it moves to major organs which bring on worst symptoms. I have Chronic Lyme and two co-infections. The … Read More Avril Lavigne on Her Struggle with Lyme Disease

Brief Lyme Update #14 *Lyme-tough Me-still have fight in me*

I had surgery for a Port, it is required for IV Treatment. I choose IV Therapy because it has a record of healing faster. I can tell already a Port for 9-12 months is no merry-go-round. The surgical area’s not bad. I fell breaking my arm or it was run over by a monster truck before the trip. The procedure is short, it takes … Read More Brief Lyme Update #14 *Lyme-tough Me-still have fight in me*

Lifesaving Lyme Disease Article And Resources For Safe Activities Outdoors This Fall

  Most countries are seeing warmer Fall and Winters, which allow ticks to live. Keep in mind enjoying hiking this Fall. Lyme Specialist recommend a spray with 20% DEET. Please read the article written in New York Magazine by a doctor who contracted Lyme Disease. He shares the difficult journey for diagnosis. It is heart breaking. Due to delay in diagnosis he had several … Read More Lifesaving Lyme Disease Article And Resources For Safe Activities Outdoors This Fall

Lyme Journal Entry 12 *Summer Refresher, NO ONE Is Immune To Lyme*

I’ve been sick for years without a correct diagnoses. I took a wild guess and found a Lyme doctor. A reckless one. He gave me a lab report saying I had three times the level of lead than normal. We spent three days looking for LEAD. I called the office, while on hold I realized this wasn’t my labs. Chronic Lyme Disease is a long … Read More Lyme Journal Entry 12 *Summer Refresher, NO ONE Is Immune To Lyme*

Tick Transmitted Illness Powassan Virus…10% cases are fatal

INFORMATION FROM CENTER OF DISEASE CONTROL ON POWASSAN VIRUS  Symptoms Many people who become infected with Powassan (POW) virus do not develop any symptoms. The incubation period (time from tick bite to onset of illness) ranges from about 1 week to 1 month. POW virus can infect the central nervous system and cause encephalitis (inflammation of the brain) and meningitis (inflammation of the membranes … Read More Tick Transmitted Illness Powassan Virus…10% cases are fatal

Lyme Journal Entry Ten ** Lyme-Winning Me-Tugging the Trophy Back **

I want to thank heatherfightslyme.wordpress.com for posting this video. She suffers from Chronic Lyme, check out the wealth of knowledge on her site. While fighting our own battle we can forget children and teens suffer from Lyme Disease. This beautifully sad video shows the struggle to find answers from a teenagers eyes. I feel her pain, want to hug her and make everything okay. … Read More Lyme Journal Entry Ten ** Lyme-Winning Me-Tugging the Trophy Back **

Lyme Disease Journal Entry Nine **Lyme-Winning Me-Hanging By A Thread**

This is a 6 minute video from the 2014 Gala which raises money for Lyme Disease research. Patients talk in the video about the symptoms and difficulty getting a proper diagnosis. I have tears in my eyes. Severe gastro illness after starting second Malaria RX added Fatigue, exhausted and frustrated Doubled neuropathy Rx in effort to reduce pain Full body edema, very painful My esophagus ulcer … Read More Lyme Disease Journal Entry Nine **Lyme-Winning Me-Hanging By A Thread**

Throw Back Thursday **The Same Yet So Different** Dedicated To My Twin

To my dearest twin, you are always there with your humor or words of encouragement. Thank you.  🙂

Lyme Disease is an illness not who I am, losing is not an option

“You can’t be that kid standing at the top of the water slide, overthinking it. You have to go down the chute.” From BOSSYPANTS  by Tina Fey I wanted to drop a short note to let people know I’m ok. I have good and bad days however it’s easy for me to remember so many have life much worse. Today is one of the … Read More Lyme Disease is an illness not who I am, losing is not an option

Lyme Journal Entry Eight **Lyme & Friends Winning–Me Tough Cookie**

A chronic illness will flush out the weak emotionally and physically. Adversity brings out the true colors in people and those who love them. I’ve attacked Lyme Disease like other challenges in life, fight with a big stick and jump higher. My husband runs the household, carrying a heavy load. I’ve been sick for five years and he is still at my side. It’s … Read More Lyme Journal Entry Eight **Lyme & Friends Winning–Me Tough Cookie**

Lyme Disease Journal Entry Seven **Lyme Winning Me Fighting Back**

This past week I did everything the doctor said not to do. The backlash was frightening. One warning from doctor is not sit for longer than thirty minutes. I spent most of Saturday and Sunday in front of the screen with few walking around breaks. The edema took over most of my body. By bedtime my feet and hands were numb, the pain was … Read More Lyme Disease Journal Entry Seven **Lyme Winning Me Fighting Back**

Can Anyone Tell Me What Day It Is? **Yosemite National Park Here We Come**

      I’ve been in the house so long there’s no reason to keep up with the day of week. Today is a perfect example, Throw Back Thursday is on Wednesday. I want to cry and laugh at the same time. The neurological effects of Lyme Disease sucks. In the Chronic phase the virus can set up house in the brain causing neurological … Read More Can Anyone Tell Me What Day It Is? **Yosemite National Park Here We Come**

Lyme Journal Entry Six **Kicked Around But Never Down**

God blessed me with the ability to feel empathy. He also filled my heart with sunshine. Today my husband participated in the Ice Bucket Challenge. My heart shines as I watch this challenge cross the globe. If we look, there is someone suffering more than ourselves. I work hard to keep in mind on the tough days.  M I’ve had a cold for a … Read More Lyme Journal Entry Six **Kicked Around But Never Down**