Throw Back Thursday * Triple Shot of Sting*

I’ve sent a dozen or so Instagram or Twitter notes. Sting is on tour, I dropped a line. Imagine my surprise he responded. “Thanks for the support and nice thoughts. Best wishes to you, God bless” WOW I was shocked.

I pray you have a great weekend. Be safe.  Xx  M

A Shimmer of Light

 

Tunnel Light

A shimmer of light

Eyes puddled with tears

Light coming closer

I’m at complete peace

God what do you want from me

I have no special skill

Was the light a miracle from high above

Trapped in darkness, I hear keys

The thought took my breath away

I fell to ground weeping

Is the light telling me better days are ahead

How can it be, he choose me.

God said there’s no miracle

A reminder

You are alive

Live each day like your last

 

Xx  M

ATTENTION: FDA/Medwatch June Update: 42 Safety Labels Changes

The FDA/Medwatch released the June Update including  42 products with safety labeling changes. The update including, Warnings, Contradictions, Warning Labels, Precautions and Adverse Reactions on medicine many take everyday. It grabbed my attention, there are several drugs I take on the list. The FDA isn’t technically responsible for over the counter products, if it can cause a health risk to the public, the product is typically recalled. You can contact FDA.gov for more information.  Xx  M

FDA MedWatchJune 2016 Safety Labeling Changes includes 42products with revisions to Prescribing Information
07/07/2016

The MedWatch June 2016 Safety Labeling Changes posting includes 42 products with safety labeling changes to the following sections: BOXED WARNING, CONTRAINDICATIONS, WARNINGS, PRECAUTIONS, ADVERSE REACTIONS, or PATIENT PACKAGE INSERT/MEDICATION GUIDE.

The “Summary Page” table provides a listing of product names and safety labeling sections revised:

http://www.fda.gov/Safety/MedWatch/SafetyInformation/ucm509048.htm

The following drugs had modifications to the BOXED WARNING, CONTRAINDICATIONS, WARNINGS, and/or PRECAUTIONS sections:

Elitek (rasburicase)
Afinitor (everolimus)
Aubagio (teriflunomide)
Avycaz (ceftazidime and avibactam)
Bendeka (bendamustine hydrochloride)
Cardura (doxazosin)
Cerebyx (fosphenytoin sodium)
Children’s Motrin (ibuprofen)
Dilantin (phenytoin) Injection, Dilantin (phenytoin) Oral Suspension
Envarsus XR (tacrolimus extended release)
Farxiga (dapagliflozin)
Farydak (panobinostat)
Hectorol (doxercalciferol)
Humira (adalimumab)
Iclusig (ponatinib hydrochloride)
Kuvan (sapropterin dihydrochloride)
Lybrel (levonorgestrel and ethinyl estradiol)
Natpara (parathyroid hormone)
Nitromist (nitroglycerin)
Orfadin (nitisinone)
Pomalyst (pomalidomide)
Prezista (darunavir) Tablet and Oral Suspension
Sabril (vigabatrin) Oral Solution
Sabril (vigabatrin) Tablet
Stivarga (regorafenib)
Tamiflu (oseltamivir phosphate) Capsules and Oral Suspension
Technivie (ombitasvir, paritaprevir and ritonavir) Tablets
Tivicay (dolutegravir)
Tybost (cobicistat)
Tyvaso (treprostinil)
Viekira PAK (ombitasvir, paritaprevir and ritonavir tablets; dasabuvir tablets)
Xigduo XR (dapagliflozin and metformin HCl extended-release)
Zosyn (piperacillin and tazobactam for injection) and Zosyn (piperacillin sodium and tazobactam sodium injection)

Lyme Update #16 *Lyme Winning–Me, blew a gasket and leaking oil

Let’s Talk Lyme

Last update, we talked about IV Therapy as a treatment option for Chronic Lyme Disease. IV Therapy is one type of medicine to help you heal. I also take a close to 20 prescriptions and who knows how many supplements. Insurance doesn’t pay for the IV Therapy which is quite common. To ask a question thru the patient Portal it’s $45 dollars. I blew a gasket last week and the portal is running hot. I’m blessed we have the money and see a top Lyme Doctor. I think there is a book called She’s Come Undone. I came undone and still finding parts.

Before quitting work, I was a highly successful, the top salesperson in the company. I set very high goals for myself and those who interact with clients. If I made an error I was accountable to make it right with the clients. If one of my people made a mistake, they got the eye and then I had to take responsibility.

There are several PA’s working in the office, mine is the hard ass, just the way I like it. I meet “The” PA while mine was out. I wasn’t impressed but chalked it up to being new. David and I have conference calls to see how adjusted to medicine, all the questions you wish would end. I heard my PA was not available for two weeks so we are meeting with the PA another PA. I am meticulous about my health care, I would reschedule before going to a fill in. I kept saying I’m not talking to her. She was reading questionnaire and David was answering. She said Melinda how are you feeling, ” ok except I almost split my head open. The knot was 5-6 inches big and it really hurt. ” Oh, that sounds like it hurt. My firecracker was lit and would blow any minute. In addition to passing over hitting my head on concrete, she said the IV that was on backorder was in and she would a one week protocol. After the one week, I am off IV’s and take ton o meds. She even indicated we might be able to coordinate to have my port removed.

IMG_1702

A couple of hours later I’m putting my medicine for the week. Right away I notice two drugs on the schedule I don’t take. I became a complete baby and ass. I refused to take my IV’s or other meds last week. We’ve dipped into retirement money to save my life. I don’t think I expect to much from the office. First she would have seen none of my Psychiatric medicines are manages my the Lyme Doctor. The had written at bottom to continue to take two Xanax at bedtime. RED FLAG. If an IV medicine has been out of stock for months, I would as the person in charge if any where delivered. RED FLAG. My head still has a painful bump and on going headaches. So, nothing they can do. RED FLAG. She wrote the new oral prescriptions and changed to date to travel to their office instead of later.

The point other than the rant is if you are not feeling right, stop and have them start at beginning. If you’re dealing with another person instead of you normal person. Slam the breaks. I was so worked up, the chest pains started. I decided I would wait until morning to write the $45 letter to my PA

Chronic Lyme Disease is not a common cold or chicken pox, people die from Lyme. I didn’t want to add to the stats. I’m not suggesting you blow a fuse. If you are not getting the treatment expected or information is not shared with you, you have no clue when they think you’ll get well. Get a new doctor and maybe scream.

There are many details to manage everyday. If I can keep track with only 30-40% cognitive ability, what’s their excuse?

I still owe you a story about TSA checking my body parts for the world to see. Be prepare if you flew in/out Reagan National.

I’m always open for questions, you’re not bothering me and I’m glad to help.

:)

M